A DISABLED Tranent girl who suffers from an extremely rare condition which affects her posture has been boosted by a specialist seating donation.

Virginie Williamson has a diagnosis of PEHO syndrome, which causes degeneration of the brain tissue. The six-year-old has delays in all areas of her development, including sight and hearing loss, while she has no independent movement and requires 24-hour support with her posture.

But thanks to a donation by Newlife Foundation for Disabled Children, Virginie has received a PPod, a specialist seating support which means she can now enjoy greater comfort at home.

Previously, Virginie had to lie on the living room sofa at home because she cannot support herself in a seated position.

The new specialist seating, provided by a partnership between Newlife and Marks & Spencer, has improved her quality of life by allowing her to sit more comfortably with her family. The equipment also helps her maintain good posture and prevents the development of spinal problems.

Gareth Williamson, Virginie’s dad, said: “It has made a very big difference for Virginie because the chair has meant she is much better able to get involved in family life. The specialist seating gives her the chance to spend time with us at the same height as everyone else.

“She enjoys getting home so she can transfer to the seat; she is so comfortable she has even fallen asleep in it.

“And, because there is a lap strap to keep her completely secure, we have complete peace of mind that she is safe.”